ADCY5 Patient Featured in NATIONAL MEDIA

  • International ADCY5  Registry
  • Support
  • Treatment
  • Research
  • Outreach
  • Fundraising

ADCY5.org Focus


Multiple disciplines to solve the Puzzle

From citizen scientists to world-renowned Ph.Ds., the ADCY5.org team has expertise in precision medicine, neurology, genetics, genomics, bioinformatics, statistics, clinical research,  drug discovery, genetic counseling, neonatal care, biology, chemistry, IOT, wearables, web development, software development, finance, training, non-profit management, and most importantly, patient support.  

SEASONED ADCY5.org Team

The ADCY5 team is coming together to build knowledge and collect information

ADCY5 patient stories

Dive deeper into the medical & scientific details

Overview of how an ADCY5 Mutation affects people 

For Docs & researchers

ADCY5.org

PATIENT REGISTRY


ADCY5 paTIENTs IN THE NEWS

ADCY5 DESCRIPTION