ADCY5.org is dedicated to those living with Adenylyl cyclase 5 (ADCY5)‐related movement disorder (ADCY5‐RMD), by supporting affected families, clinicians providing care, and researchers studying ADCY5.
Support Our Work
Support our work through a donation or sharing your experience with Adenylyl cyclase 5 (ADCY5)‐related movement disorder (ADCY5‐RMD).
No-Charge Testing
No-charge genetic testing is available. If symptoms sound familiar to you, get the form you need to get testing.
Newly Diagnosed?
Learn more about the disease, connect with other families, support research working toward treatment.
Get Involved In Research
A Natural History Study has commenced. Get involved by enrolling your family.
Community
Our community is made up of patients, their families and caregivers, clinicians, and researchers.
Research
ADCY5.org supports research happening now. Share your journey, answer surveys, provide medical records so more can be learned about the disease.
Resources
There are resources available for you as you navigate Adenylyl cyclase 5 (ADCY5)‐related movement disorder (ADCY5‐RMD) and rare disease.
“Receiving a diagnosis has allowed us to connect with the small, but strong, community around Adenylyl cyclase 5 (ADCY5)‐related movement disorder (ADCY5‐RMD), and have a better sense of where to focus our efforts.”
– Family of Maya, age 8