https://www.adcy5.org/adcy5 daily 0.75 2024-06-20 https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1613766353843-6GWPLSI5REEFIDHVMBSH/gene_offwhite.png ADCY5-related movement disorder https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1613766370087-R0E30LU8MDGHWU032O14/enzyme_offwhite.png ADCY5-related movement disorder https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1613766395190-D187UROICYDV73RGCJ4Z/autosomal_offwhite.png ADCY5-related movement disorder https://www.adcy5.org/home daily 1.0 2026-06-03 https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/f6fa8875-982f-47d1-93f1-2f7ed82f096e/HomeSlideshow.gif ADCY5-related movement disorder - ADCY5.org is dedicated to those living with Adenylyl cyclase 5 (ADCY5)‐related movement disorder (ADCY5‐RMD), by supporting affected families, clinicians providing care, and researchers studying ADCY5. https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1613766242875-NU237D50B0UE7BQQLLKL/donate_offwhite.png ADCY5-related movement disorder https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1613766302330-K3OFMC56DXOWTETQN8ID/testing_offwhite.png ADCY5-related movement disorder https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1613766263595-6R84GSCI1YFA76NJDXBM/registry_offwhite.png ADCY5-related movement disorder https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1613766318766-UFUHCK642F49JNRJ1O7R/research_offwhite.png ADCY5-related movement disorder https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1613733167550-DMIDZIW2DDCX3HYP73T5/community2.png ADCY5-related movement disorder - Community Our community is made up of patients, their families and caregivers, clinicians, and researchers. https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1613733214585-JXTIOVTS6PY0N0JZRTU8/research2.png ADCY5-related movement disorder - Research ADCY5.org supports research happening now. Share your journey, answer surveys, provide medical records so more can be learned about the disease. https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1613733256273-CPQFU4Q00M9NF5SFHZ94/resources.png ADCY5-related movement disorder - Resources There are resources available for you as you navigate Adenylyl cyclase 5 (ADCY5)‐related movement disorder (ADCY5‐RMD) and rare disease. https://www.adcy5.org/maya daily 0.75 2023-10-16 https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1613735452782-2NOURO8Y2DJD37JYS4N1/maya01.jpg Maya - ADCY5-related movement disorder https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1613735452805-ACTSV0RJ26A5I3Q7JD5R/maya03.jpg Maya - ADCY5-related movement disorder https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1613735451425-X6Z15RP64WT9S54RRGKW/maya02.jpg Maya - ADCY5-related movement disorder https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1616258827630-JMMOFKJGFYMY2TE448KQ/adryan.png Maya - ADCY5-related movement disorder https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1616258813731-SKLRVPR22VNPWXT7F3L7/djaro.png Maya - ADCY5-related movement disorder https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1614292223056-SWV4Q35QXW3O45ZFV8LD/grace.png Maya - ADCY5-related movement disorder https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1613766645188-1RTUWK0CO4W2EKV9BJ1U/registry_offwhite.png Maya - ADCY5-related movement disorder https://www.adcy5.org/lilly daily 0.75 2025-10-02 https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1613735635288-1G22C5XMRPESC6CQP6WU/lilly01.jpg Lilly - ADCY5-related movement disorder https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1613735635499-4MIG8ZFZEP00KQLTV63X/lilly03.jpg Lilly - ADCY5-related movement disorder https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1613735635443-ZRUBDIHKT4UIOX4VCSB4/lilly02.jpg Lilly - ADCY5-related movement disorder https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1614292340906-8M373DDYO796HAHJTG0Z/grace.png Lilly - ADCY5-related movement disorder https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1613735573997-DB4BZQRMM2ZQPDYL7MIB/maya.png Lilly - ADCY5-related movement disorder https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1614292363115-URWZQLT2DSBTZMMTF793/kendall.png Lilly - ADCY5-related movement disorder https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1613766670603-5CFMM91MKVV8S9MMNSYZ/registry_offwhite.png Lilly - ADCY5-related movement disorder https://www.adcy5.org/registry daily 0.75 2023-10-16 https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1613766836577-8ZMBK43I79JM1GRGD80V/testing_offwhite.png Registry - ADCY5-related movement disorder https://www.adcy5.org/community daily 0.75 2026-03-23 https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1616291235187-H1MQNJ88ND7DBXXGW0W9/anna.png Community - ADCY5-related movement disorder https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1616160915001-3VQNQ1T9FIIZ46EMOF3O/enzo.png Community - ADCY5-related movement disorder https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1616291337251-391Q0NUUFAMPIXCZ75VA/laura.png Community - ADCY5-related movement disorder https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/e53483f2-af89-481b-bee2-9860f7622c36/Grace.png Community - ADCY5-related movement disorder https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1616258657504-XHO150ZHVOP4ED329ZO7/adryan.png Community - ADCY5-related movement disorder https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1616291456041-7Q7MQM6GDX4CKQDH0WVJ/kendall.png Community - ADCY5-related movement disorder https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1616291847806-DI8ZD5Z9P4Q1GGR5O0O7/maya.png Community - ADCY5-related movement disorder https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/c03e3446-af10-458d-80d0-aa257565b570/L+Grossman+Headshot+2023.jpg Community - ADCY5-related movement disorder https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1616291909080-WZ2OXHG8384LM3ON4RDN/olive.png Community - ADCY5-related movement disorder https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1616291761011-HZTBGH7W1JJQJX28S1YT/francesca.png Community - ADCY5-related movement disorder https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/3e408cc2-5ca7-41d2-87af-dbd997557809/Meredith.png Community - ADCY5-related movement disorder - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1616160938369-060RTQQEALHXWB0CDLO0/hugo.png Community - ADCY5-related movement disorder https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1616291739753-CRZJADBNCHOD0BPBA5QS/ginevra.png Community - ADCY5-related movement disorder https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1616258684649-1HKSQQDFZVLVWN0JXYDU/djaro.png Community - ADCY5-related movement disorder https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1613734631124-627XREHXC4VJQHOW3Z7C/lillynews.png Community - ADCY5-related movement disorder - Lilly Global Genes - Coming Home Due to COVID-19 RespectAbility - The Value of Being Unbiased RespectAbility - Eye of the Lioness The Quaker Campus - Letter to the Editor Medium - Great Expectations: How Patient Advocacy Gave Me Hope National Geographic - “We Gain Hope” The Story of Lilly Grossman’s Genome The Atlantic - How Genome Sequencing Creates Communities Around Rare Disorders LA Times - Family hopes genome test will help cure girl’s mystery disease LA Times - Gene mutation didn’t slow down high school senior https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1613734678916-72NTZ6M9JAM23GV38N6M/grace.png Community - ADCY5-related movement disorder - Grace YouTube - Grace and Fran Interview with Weekend Sunrise7 News Sydney - Caffeine helping to treat young patients in Sydney with neurological disorders 7 News Sydney (Instagram) - The Children's Hospital at Westmead has stumbled upon a remarkable treatment for a group of young patients with a rare neurological disorder. https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1613766466759-LA4ECWAQGCXYW962DD36/registry_offwhite.png Community - ADCY5-related movement disorder https://www.adcy5.org/francesca daily 0.75 2023-10-16 https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1613735198562-EAJSBIFWA072RUGIVEZ5/francesca01.jpg Francesca - ADCY5-related movement disorder https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1613735198662-MEUXF2YWFWZ6B4LCZ9MT/francesca05.jpg Francesca - ADCY5-related movement disorder https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1613735198352-9STI8ORDLXUEMIRXULKR/francesca04.jpg Francesca - ADCY5-related movement disorder https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1613735198399-WJY78NUY1DU5QWXI9876/francesca03.jpg Francesca - ADCY5-related movement disorder https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1613735199758-89FVRZ50VM4DAK38EIM4/francesca02.jpg Francesca - ADCY5-related movement disorder https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1613735198771-C2MK8A2E8MOJDFQV5W8E/francesca07.jpg Francesca - ADCY5-related movement disorder https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1613735198305-ND792VHCFCW9E2GI25NQ/francesca06.jpg Francesca - ADCY5-related movement disorder https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1613734481367-QJJ89KH3OHHNCUOUDRQJ/maya.png Francesca - ADCY5-related movement disorder https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1613734495183-IGJF0WD8FNGQQDB4JUY6/lilly.png Francesca - ADCY5-related movement disorder https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1614291724620-E9KE17T0KE6TEJCR8IWB/grace.png Francesca - ADCY5-related movement disorder https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1613766581235-ZANFS9QFQ3LCGRLAB2GU/registry_offwhite.png Francesca - ADCY5-related movement disorder https://www.adcy5.org/contact daily 0.75 2023-10-16 https://www.adcy5.org/donate daily 0.75 2023-10-16 https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1613738901223-4SQB22UEMRIQDXVAOEG6/donate_lg.png Donate - ADCY5-related movement disorder https://www.adcy5.org/about-us daily 0.75 2026-06-23 https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/2158507b-3e22-4245-96e8-f31afdd315b7/Bradbury.jpeg https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/f31c8fac-fdbc-4d71-9e43-b4f4417cc642/coll-tom-02006-web.jpg https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/eab9ccd0-4156-49be-9f73-84cf73662b92/headshot-jason-keys.webp https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/6aa07a97-822f-419c-bd36-985f477e4e3a/Nick+J+Schork.webp https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/87693205-d69d-4755-bd7b-8c36e5a60164/Ann+Bang+image.jpeg https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/cf2d6634-6bca-4bd7-948f-2369acfd8d7f/Darius+image.jpeg https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/d1b06fc7-0f15-4f33-a6d7-415931565faf/mcmanus.jpeg https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/6fa3c213-8e7e-4a74-9898-81a857737fa8/Kruer+image.jpeg https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/65575fcd-3616-4941-8853-7e406744c261/Shakeeb.jpeg https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/15f4f5ad-dbaf-4e40-8d1d-dc8ef7d19166/Emmanuel.jpeg https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/e049bc13-a231-495a-8e56-b384c52400a0/Chang+image.jpeg https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/887e8740-91f2-4838-98f6-bb26ff11be20/Hart+image.jpeg https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/7c130585-7c10-4c7c-af96-b6aa6ae0be35/Uma+image.png https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/c003e8df-051e-4323-a064-f62609106d64/Emma.jpeg https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/642af8c7-4531-4791-b549-1af48b12f318/Tamara+image.jpeg https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/5d135d11-7780-4e9a-8475-846a9dd85e39/Sinz+image.jpeg https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/355cb964-2073-405e-be9b-36f3a1774bb9/Marla+Tobia+APRN+Head+Shot.jpg https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1613737989095-FIIVQ17GIJ02BMFUGW2W/44fe35b774478aeeaadbbda7db79866c.jpg About Us - ADCY5-related movement disorder https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1613738627057-C74EIDZYAMCJL3O4JCUH/rarescience.jpg About Us - ADCY5-related movement disorder https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1613738641128-V29KSSGMH2I7UGM6WXFO/cirm.jpg About Us - ADCY5-related movement disorder https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1613766549613-XSCJ4HBY2PI4YJCCBLO6/donate_offwhite.png About Us - ADCY5-related movement disorder https://www.adcy5.org/resources daily 0.75 2025-09-16 https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1613736951807-3WHAGE67PA92ZF6IYZSH/WeAreAllRare.png Resources - ADCY5-related movement disorder - We Are All Rare The perfect tool for children and adults to start the discussion about Rare Disease. Written by a Rare Disease patient and her mom, you can use the puzzles, word search, and even the wheat/corn/soy/dairy free cookie recipe, to learn about how some students accommodate in school. Teachers can use them in classrooms, students can take them home to share with parents and siblings, and students can share with friends. https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/ac4c0e52-9239-458c-bde6-c8ffd2cf7f64/zoom.png Resources - ADCY5-related movement disorder - Family calls on Zoom Dates that have two times will follow the same agenda so there is no need to join both. Please join the best time for you. Dates are in the footer at the bottom of the page. Times are in Los Angeles/ Pacific Time zone. https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1614634221964-MK5O9GI1DCT3JJNAC7JJ/slack.png Resources - ADCY5-related movement disorder - Slack Channel Connect with other families on our private Slack Channel. Contact us to request access. https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1615296597206-6L4JPDQWVMWA3FR1ZL12/FindUsOnFacebook2.png Resources - ADCY5-related movement disorder - Facebook Community Join our Facebook community to connect with other ADCY5-related dyskinesia families. https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1616513065814-JAFV5Y90D10XFE0SICJP/instagram2.png Resources - ADCY5-related movement disorder - Instagram Follow us on Instagram to learn more about our community. https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1616162118839-CL8W27E62RC4WT4A90SN/01_ADA.png Resources - ADCY5-related movement disorder https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1616162915224-QNUNAXIKGN83NUZ9X2AH/04_GG.png Resources - ADCY5-related movement disorder https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1616163289056-L4CFFZ188GXTV7GURDKQ/07_cdss.png Resources - ADCY5-related movement disorder https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1616163563957-7C1CI5HJAH7CM31H012P/10_Epilepsy.png Resources - ADCY5-related movement disorder https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1616165093294-9XSIZJ7MZV8QV9KA3MJV/13_NORD.png Resources - ADCY5-related movement disorder https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1616165663361-7ZBUXIJ3IWFYZIK6DIZR/16_NCATs.png Resources - ADCY5-related movement disorder https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1616165692175-USB2VZVG8ZGI4XK9LPCK/19_WritesLaw.png Resources - ADCY5-related movement disorder https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/81211f42-1468-4bf7-b215-861331c03ca5/Logo+Combined+Brain Resources - ADCY5-related movement disorder - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1616162133677-SI14DK3JZZ9X2L0MHO1D/02_DHCS.png Resources - ADCY5-related movement disorder https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1616163298686-ZTB55AWIO8R8P94HFMA4/08_Sanford.png Resources - 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Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1616162160562-DPA0Q13XTBWWIPEGHPNT/03_geneticalliance.png Resources - ADCY5-related movement disorder https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1616162932590-EBYZDMKLEQQYTO8QUW72/06_IDEA.png Resources - ADCY5-related movement disorder https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1616163308418-D1C5GW3HLORREQ1BG2UX/09_CP.png Resources - ADCY5-related movement disorder https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1616163585316-7G1ND34MNR515CO327A8/12_RGI.png Resources - ADCY5-related movement disorder https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1616165114898-V06VACYFVSE2NJ43V3M5/15_RUN.png Resources - ADCY5-related movement disorder https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1616165682221-H89XLRZFJZQ58SYQYMSB/18_Unique.png Resources - 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Coming Home Due to COVID-19 RespectAbility - The Value of Being Unbiased RespectAbility - Eye of the Lioness The Quaker Campus - Letter to the Editor Medium - Great Expectations: How Patient Advocacy Gave Me Hope National Geographic - “We Gain Hope” The Story of Lilly Grossman’s Genome The Atlantic - How Genome Sequencing Creates Communities Around Rare Disorders LA Times - Family hopes genome test will help cure girl’s mystery disease LA Times - Gene mutation didn’t slow down high school senior https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1613734678916-72NTZ6M9JAM23GV38N6M/grace.png Community - feb 2023 - Grace YouTube - Grace and Fran Interview with Weekend Sunrise7 News Sydney - Caffeine helping to treat young patients in Sydney with neurological disorders 7 News Sydney (Instagram) - The Children's Hospital at Westmead has stumbled upon a remarkable treatment for a group of young patients with a rare neurological disorder. https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1613766466759-LA4ECWAQGCXYW962DD36/registry_offwhite.png Community - feb 2023 https://www.adcy5.org/adcy5-clinicians daily 0.75 2025-10-07 https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/7a6da38f-e57e-49b3-8e5f-ec22a979093d/Armenian+flag Clinicians - ADCY5-related movement disorder - Armenia Dr. ZD Tavadyan Neuropathologist Neurologist, Head of the Center for Parkinson’s disease and other Movement Disorders, “Somnus” Neurology Clinic Contact information: https://www.doctors.am/en/doctor/zaruhi-tavadyan https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/b77d4be6-9b48-4900-bb8c-9e45fa59862b/Australia+flag.png Clinicians - ADCY5-related movement disorder - Australia Dr Eunice Chan, MD Paediatric Neurologist Royal Children’s Hospital Melbourne Movement disorder clinic Contact information: movementdisorders@rch.org.au Dr. Victor Fung, MD Adult Neurologist The Specialist Medical Centre Westmead New South Wales Contact information: https://www.healthshare.com.au/profile/professional/142244-aprof-victor-fung/#overview Dr. Shekeeb Mohammad, MD Paediatric Neurologist Westmead Children’s Hospital New South Wales Contact information: shekeeb.mohammad@health.nsw.gov.au https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/2ac4a8a6-89a4-4dc2-a612-70a7a3c106e5/Brazil_flag_300.png Clinicians - ADCY5-related movement disorder - Brazil Dr. Andre Pessoa, MD Hospital Ifantil Albert Sabin Fortaleza, Brazil Contact information: https://neurogenetics.com.br/team-member/dr-andre-pessoa/ Dra. Patricia Dumke da Silva Möller, MD Versi Clínica, Centro Clínico Biocenter Brasília, Brazil Contact information: https://www.patriciamoller.com.br/ Dr. Patricia da Silva Sousa, MD Children's Hospital Doctor Odorico Amaral de Matos São Luis, Brazil Contact information: https://www.escavador.com/sobre/1463668/patricia-da-silva-sousa-carvalho https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/a202b696-a75a-4ad1-8875-c5446f3ca54c/Cananda+flag.png Clinicians - ADCY5-related movement disorder - Canada Dr. Inge Meijer, MD Hospital Sainte-Justine Montréal, QC, Canada Contact information: https://dystoniacanada.org/inge-meijer-m-d-ph-d-frcp-c Dr. Tamara Pringsheim, MD University of Calgary Calgary, Canada Contact information: https://contacts.ucalgary.ca/info/chs/profiles/1-4838725 https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/56250a92-9b77-4e7a-8b9d-2b2d3e8196b1/Flag_of_France.png Clinicians - ADCY5-related movement disorder - France Dr. Emmanuel Flamond-Roze, MD Paris Brain Institute Paris, France Contact information: https://www.movit.paris/team-pi/emmanuel-flamand-roze https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/ef75f42b-45b1-4fe1-a2cb-01ce777a7d5c/german-flag-medium.png Clinicians - ADCY5-related movement disorder - Germany Prof. Dr. Andreas Merkenschlager, MD University of Leipzig Leipzig, Saxony, Germany Contact information: https://www.uniklinikum-leipzig.de/einrichtungen/kinderklinik/Seiten/neuropaediatrie.aspx https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/3e700873-f536-4c22-a1be-62804ad03511/Flag-of-The-Netherlands3.png Clinicians - ADCY5-related movement disorder - Netherlands Dr. Rick Brandsma, MD University Medical Center Utrecht Utrecht, Netherlands Contact information: https://www.umcutrecht.nl/nl/zorgverleners/brandsma-r-rick Dr. Jolanda Schieving, MD Radboud University Medical Center Nijmegen, Netherlands Contact information: https://www.radboudumc.nl/en/news/2021/a-personal-glimpse-of-jolanda-schieving Dr. Laura van de Pol, MD Academic Medical Center Amsterdam, Netherlands Contact information: https://www.vumc.nl/zorg/uw-artsen-en-zorgverleners/zorgverlener/l.m.-laura-van-de-pol.htm https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/dfc5a605-b567-4abf-9072-5b460d0489d0/Peruvian+flag Clinicians - ADCY5-related movement disorder - Peru Dr. Mario Cornejo Olivas Research Professor Universidad Científica del Sur Contact information: https://cris.cientifica.edu.pe/p/en/persons/mario-cornejo-olivas https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/48ce15f8-2cdf-49f8-adc7-23a7470c90d1/Philippines+flag Clinicians - ADCY5-related movement disorder - Philippines Dr. Gerard Saranza Department of Internal Medicine St. Vincent General Hospital Contact information: https://www.svgh.ph/doctor_profile?doc_name=Dr.+Gerard+Saranza https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/d34c6fc4-d7ed-45d6-b1c3-b0391c9df3de/poland+flag.jpg Clinicians - ADCY5-related movement disorder - Poland Dr. Lukasz Milanowski, MD Medical University of Warsaw Contact information: https://www.researchgate.net/profile/Lukasz-Milanowski https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/885957f0-64f7-447e-91e4-184c3ace3d43/united-kingdom.png Clinicians - ADCY5-related movement disorder - United Kingdom Dr. Dan Lumsden, UK, MD Kings College London London, England Contact information: https://kclpure.kcl.ac.uk/portal/en/persons/dan-lumsden(f84ae62b-b8af-4b9a-864b-ca8109c19031).html https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/ba6ac402-c2c0-45e1-be24-4e08bd972308/American+Flag.jpg Clinicians - ADCY5-related movement disorder - United States of America Dr. Galen Breningstal, MD Gilette Children’s St. Paul, Minnesota Contact information: https://www.gillettechildrens.org/care-team/galen-breningstall-md-pediatric-neurologist Dr. Tim Feyma, MD Gillettes Children’s Hospital and Clinics St. Paul, Minnesota Contact information: https://www.gillettechildrens.org/care-team/timothy-feyma-md-pediatric-neurologist Dr. Jennifer Friedman, MD Rady Children’s Hospital/ UC San Diego San Diego, California Contact information: https://www.rchsd.org/doctors/jennifer-friedman-md/ Dr. Nutan Sharma, MD, PhD Mass General Brigham Dystonia Clinic at Massachusetts General Hospital Boston, Massachusetts Contact information: https://www.massgeneral.org/doctors/17303/nutan-sharma Dr. Naomi Lubarr, MD Paediatric Neurologist Mount Sinai Beth Israel & Hakensack University Medical Center Contact information: https://www.linkedin.com/in/naomi-lubarr-7649a09b/ Dr. Michael Okun, MD University of Florida Gainesville, FL Contact information: https://neurology.ufl.edu/profile/okun-michael/ Dr. Laura Tochen, MD Children’s National Hospital Washington DC Contact information: https://childrensnational.org/visit/find-a-provider/laura-tochen Dr. Kara Wyant, MD University of Michigan Ann Arbor, Michigan Contact information: https://medicine.umich.edu/dept/neurology/kara-j-wyant-md Dr. Kathryn Yang, MD Boston Children's Hospital Boston Contact information: https://www.childrenshospital.org/directory/kathryn-yang https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1613766525533-9D90XPYGBPFQZE83KPN9/registry_offwhite.png Clinicians - ADCY5-related movement disorder https://www.adcy5.org/adcy5-clinicians-patient-form daily 0.75 2024-05-06 https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1613766525533-9D90XPYGBPFQZE83KPN9/registry_offwhite.png Patient Clinician Form https://www.adcy5.org/new-page daily 0.75 2024-05-06 https://www.adcy5.org/adcy5-patient-stories-form daily 0.75 2024-08-05 https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1613766525533-9D90XPYGBPFQZE83KPN9/registry_offwhite.png Patient Stories Form https://www.adcy5.org/meredith daily 0.75 2026-03-22 https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1616258827630-JMMOFKJGFYMY2TE448KQ/adryan.png Meredith https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1616258813731-SKLRVPR22VNPWXT7F3L7/djaro.png Meredith https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1614292223056-SWV4Q35QXW3O45ZFV8LD/grace.png Meredith https://images.squarespace-cdn.com/content/v1/5fe2b7fbabda87280e0dcb94/1613766645188-1RTUWK0CO4W2EKV9BJ1U/registry_offwhite.png Meredith