Hope Knows No Boundaries
Individuals with Disabilities Education Act
In-Home Supportive Services (IHSS) Program
contact information depends on residence in the state of California
Sanford Burnham CORDS
The Cerebral Palsy Foundation
The Epilepsy Foundation
United Mitochondrial Disease Foundation
Rare Genomics Institute
National Organization for Rare Disorders (NORD)
Rare Disease Network
Rare Disease Report
Rare Disease United Foundation
NIH / National Center Advancing Translational Sciences
Unique Chromosome Network
Child Neurology Foundation www.childneurologyfoundation.org
ADCY5 Gene Mutation Support and Research Organization - ADCY5 International Patient Registry
The perfect tool for children and adults to start the discussion about Rare Disease. Written by a Rare Disease patient and her mom, you can use the puzzles, word search, and even the wheat/corn/soy/dairy free cookie recipe, to learn about how some students accommodate in school.
Teachers can use them in classrooms, students can take them home to share with parents and siblings, and students can share with friends.
We Are All Rare Activity Books are available for purchase HERE. Proceeds from the books go to ADCY5.org.
FIND OUT MORE
Email: info@ADCY5.ORG +1.858.882.7280
Support and Research Organization
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