Americans with Disabilities Act

California Children’s Services

Genetic Alliance

Global Genes

Hope Knows No Boundaries

Individuals with Disabilities Education Act

In-Home Supportive Services (IHSS) Program
contact information depends on residence in the state of California

Sanford Burnham CORDS

The Cerebral Palsy Foundation

The Epilepsy Foundation

United Mitochondrial Disease Foundation

Rare Genomics Institute

National Organization for Rare Disorders (NORD)

Rare Disease Network

Rare Disease Report

Rare Undiagnosed

Rare Disease United Foundation

NIH / National Center Advancing Translational Sciences

Dystonia Coalition

Unique Chromosome Network

Wrights Law