This donate button will donate to

To donate to Rare Science, click on their logo below and you will be taken to their site.

Rare Science works directly with patient families and foundations to find more immediate therapeutic solutions for children with rare diseases.

Christina Waters, PhD MBA
President/CEO RARE Science, Inc.

RARE Science has initiated the RARE Bear program, a grassroots community-driven outreach for kids with rare disease. Community volunteers create one-of-a-kind teddy bears for one-of-a-kind “rare” kids like Lilly. On the evening of August 13th, 2015 Lilly was gifted the first RARE Bear, kicking off a mission to change the future for kids with rare disease. Lilly posted on her Instagram later that night,

“Honored to be the first rare disease patient to receive a RARE Bear from RARE Science! Quilters all over the world make these bears for children with rare diseases to raise awareness and funds. In return, the quilter receives a photo of their bear with the child. My bear, I’ve named Novella (meaning a short novel) was specially made for me with pink fabric and a design of books by Christina Waters’ mom. Christina started RARE Science. Thanks Chris, for all your help and support with ADCY5!”

- Lilly G.